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市場調查報告書
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1855835

2025年全球雲端基礎罕見疾病家族登記市場報告

Cloud-Based Rare Disease Family Registry Global Market Report 2025
出版日期: | 出版商: The Business Research Company | 英文 250 Pages | 商品交期: 2-10個工作天內

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簡介目錄

近年來，雲端基礎的罕見疾病家族登記市場規模迅速擴張，從2024年的11.9億美元成長到2025年的14億美元，複合年成長率達17.8%。這一成長可歸因於藥物核准數量的增加、對醫療保健數位化需求的成長、先進數據分析技術的日益普及、醫療機構自行錄入（基於站點）的登記系統日益普及以及對真實世界證據（RWE）需求的不斷成長。

預計未來幾年，雲端基礎的罕見疾病家族登記市場將快速成長，到2029年市場規模將達到26.8億美元，複合年成長率（CAGR）為17.6%。預測期內的成長主要受以下因素驅動：人工智慧主導的分析技術日益普及；製藥公司擴大利用登記系統進行上市後監測；對模組化和專科特定登記系統的需求不斷成長；透過入口網站和遠端工具增強病人參與；以及健康資訊交換（HIE）和互通性標準的日益普及。預測期內的關鍵趨勢包括：穿戴式裝置和物聯網裝置的整合；用於安全資料共用的區塊鏈解決方案的開發；遠端醫療和遠端監測的日益融合；交換醫療資訊（EHR）登記系統互通性的創新；標準化方面的投資；以及病患主導的資料收集的增加。

雲端基礎的罕見疾病家庭登記系統是一個線上平台，旨在安全地收集、儲存和管理與罕見疾病相關的健康和家庭資訊，使患者、家屬和醫療保健專業人員能夠遠端共用數據，以支持研究、改善患者照護並促進臨床試驗招募。

雲端基礎的罕見疾病家族登記系統的關鍵組成部分是軟體和服務。軟體包含程式、資料和指令，使電腦或裝置能夠執行特定任務。部署選項包括公共雲端、私有雲端和混合雲端解決方案。應用領域包括病患資料管理、研究、臨床試驗和基因資料收集。最終用戶包括醫院和診所、研究機構、製藥和生物技術公司、患者權益組織以及其他相關人員。

美國在2025年春季突然提高關稅，由此引發的貿易摩擦對醫療保健產業造成了嚴重衝擊，尤其對關鍵醫療設備、診斷試劑和藥品的供應造成了嚴重影響。醫院和醫療機構面臨進口手術器械、影像設備以及注射器、導管等耗材成本不斷上漲的困境。這些成本的增加加劇了醫療預算的緊張，導致一些醫療機構必須推遲設備升級或將成本轉嫁給患者。此外，原料和零件的關稅也阻礙了必需藥品和醫療設備的生產，造成供應鏈瓶頸。為了應對這項挑戰，醫療產業正在積極調整籌資策略，盡可能地促進本地生產，並呼籲對緊急醫療產品實施關稅豁免。

本研究報告是商業研究公司（The Business Research Company）最新系列報告的一部分，提供雲端基礎罕見疾病家族登記市場統計數據，包括全球市場規模、區域佔有率、市場佔有率主要競爭對手、雲端基礎的雲端基礎細分、市場趨勢以及雲端基礎罕見疾病家族登記行業的商機。這份雲端基礎罕見疾病家族登記市場研究報告全面概​​述了您所需的一切資訊，並對該行業的現狀和未來發展趨勢進行了深入分析。

精準醫療的日益普及預計將推動雲端基礎的罕見疾病家族登記市場成長。精準醫療根據個人的遺傳、環境和生活方式因素量身定做治療和預防策略。基因組序列測定技術的進步使得人們能夠更準確地了解患者的基因組成，從而促進了精準醫療的應用。雲端基礎的罕見疾病家族登記系統透過集中管理包括基因、臨床和治療資訊在內的全面患者數據，為個人化醫療提供支持，從而幫助精準醫療的發展。例如，個人化醫療聯盟在2024年2月報告稱，美國食品藥物管理局（FDA）在2023年核准了16種針對罕見疾病的新型個人化療法。這些新治療方法，包括針對癌症和其他疾病的療法，都凸顯了精準醫療日益受到重視。因此，這一趨勢正在推動雲端基礎的罕見疾病家族登記市場的擴張。

在雲端基礎罕見疾病家族登記市場中營運的公司正在推出雙語協作登記等創新舉措，以增強病患、家屬和研究人員的參與度。雙語協作登記是雲端基礎的系統，支援多種語言，並允許資料儲存在本地站點，同時遵守當地的知情同意和隱私法規。例如，2025年6月，美國國家罕見疾病組織（NORD）宣布計畫在加拿大推出兩個病患登記系統：一個用於苯酮尿症（PKU），另一個用於黏多醣貯積症（MPS）。這些登記系統由NORD與加拿大計劃團體、臨床醫生和研究人員合作創建，將成為美國以外首批根據國際罕見疾病研究協會（IAMRARE）計畫建立的登記系統。這些登記系統將遵守各州的知情同意法律，實現即時數據收集和分析，並支持罕見代謝疾病的研究、臨床試驗和患者招募。

2025年5月，總部位於美國的股權公司Vora Ventures收購了Hive Networks Inc.，旨在拓展其在罕見疾病和慢性病研究領域的影響力。 Hive Networks是一家醫療技術公司，提供雲端基礎的AI驅動平台，促進患者、家屬、臨床醫生和研究人員之間的協作。此次收購旨在利用Hive Networks的平台作為安全資料交換的協作基礎設施，從而改善罕見疾病和慢性病領域的研究合作、資料共用以及患者預後。

雲端基礎的罕見疾病家族登記市場由提供資料託管、資料整合、資料安全、資料共用、資料分析、資料儲存、互通性支援、登記客製化、病人參與支援、技術支援、培訓服務和維護服務等服務的實體所獲得的收入所構成。市場價值包括服務供應商銷售的任何營業單位商品的價值，或包含在其服務產品中的任何相關商品的價值。雲端基礎的罕見疾病家族登記市場還包括資料儲存設備、網路設備、診斷試劑套件、生物辨識設備、病患監測設備、資料備份系統、安全硬體、運算工作站和行動裝置的銷售。該市場的價值為“出廠價”，即商品製造商或創造者銷售的商​​品價值，無論銷售對像是其他營業單位（包括下游製造商、批發商、經銷商和零售商）還是直接銷售給最終客戶。該市場中的商品價值還包括商品創造者銷售的任何相關服務的價值。

目錄

第1章執行摘要

第2章 市場特徵

第3章 市場趨勢與策略

第4章 市場：宏觀經濟情景，包括利率、通貨膨脹、地緣政治、貿易戰和關稅，以及新冠疫情及其復甦對市場的影響

第5章 全球成長分析與策略分析框架

  • 全球雲端基礎罕見疾病家族登記系統：PESTEL 分析（政治、社會、技術、環境、法律因素、促進因素和限制因素）
  • 終端用戶產業分析
  • 全球雲端基礎罕見疾病家族登記市場：成長率分析
  • 全球雲端基礎罕見疾病家族登記市場表現：規模與成長，2019-2024年
  • 全球雲端基礎罕見疾病家族登記市場預測：規模與成長，2024-2029年，2034年預測
  • 全球雲端基礎的罕見疾病家族登記系統：潛在市場規模 (TAM)

第6章 市場細分

  • 全球雲端基礎罕見疾病家族登記市場：依組成部分分類，實際值及預測值，2019-2024年、2024-2029年預測值、2034年預測值
  • 軟體
  • 服務
  • 全球雲端基礎罕見疾病家族登記市場：依部署模式、效能和預測分類，2019-2024年、2024-2029年預測、2034年預測
  • 公共雲端
  • 私有雲端
  • 混合雲端
  • 全球雲端基礎罕見疾病家族登記市場：依應用領域分類，實際結果及預測（2019-2024年、2024-2029年預測、2034年預測）
  • 病患資料管理
  • 研究
  • 臨床試驗
  • 遺傳資料收集
  • 其他用途
  • 全球雲端基礎的罕見疾病家族登記市場（依最終用戶分類）、實際數據及預測（2019-2024年、2024-2029年預測、2034年預測）
  • 醫院和診所
  • 研究所
  • 製藥和生物技術公司
  • 患者權益倡導組織
  • 其他最終用戶
  • 全球雲端基礎罕見疾病家族登記市場：依軟體、類型、實際值及預測值細分，2019-2024年、2024-2029年預測值、2034年預測值
  • 電子資料擷取
  • 資料管理平台
  • 分析和報告工具
  • 病人參與工具
  • 臨床試驗管理系統
  • 全球雲端基礎罕見疾病家族登記市場：依服務、類型、實際值及預測值細分，2019-2024年、2024-2029年預測值、2034年預測值
  • 實施與整合
  • 培訓和支持
  • 資料託管與安全
  • 諮詢服務
  • 維護和升級

第7章 區域和國家分析

  • 全球雲端基礎罕見疾病家族登記市場：依地區分類，實際結果及預測，2019-2024年、2024-2029年預測、2034年預測
  • 全球雲端基礎罕見疾病家族登記市場：按國家/地區分類，實際結果和預測，2019-2024 年、2024-2029 年預測、2034 年預測

第8章 亞太市場

第9章：中國市場

第10章 印度市場

第11章 日本市場

第12章：澳洲市場

第13章 印尼市場

第14章 韓國市場

第15章：西歐市場

第16章英國市場

第17章：德國市場

第18章：法國市場

第19章：義大利市場

第20章：西班牙市場

第21章 東歐市場

第22章：俄羅斯市場

第23章 北美市場

第24章美國市場

第25章：加拿大市場

第26章 南美洲市場

第27章：巴西市場

第28章 中東市場

第29章：非洲市場

第30章：競爭格局與公司概況

  • 雲端基礎的罕見疾病家族登記市場：競爭格局
  • 雲端基礎的罕見疾病家族登記市場：公司概況
    • Thermo Fisher Scientific Inc. Overview, Products and Services, Strategy and Financial Analysis
    • IQVIA Holdings Inc. Overview, Products and Services, Strategy and Financial Analysis
    • ICON plc Overview, Products and Services, Strategy and Financial Analysis
    • Syneos Health Inc. Overview, Products and Services, Strategy and Financial Analysis
    • Parexel International Corp. Overview, Products and Services, Strategy and Financial Analysis

第31章：其他領先和創新企業

  • Medidata Solutions Inc.
  • FIGMD Inc.
  • OM1 Inc.
  • Mission Health Labs Inc.
  • TREAT-NMD Global Registries Platform
  • Seqster PDM Inc.
  • ArborMetrix Inc.
  • OpenClinica LLC
  • Pulse Infoframe Inc.
  • Oracle Healthcare Pvt. Ltd.
  • QuesGen Systems Inc.
  • FTD Disorders Registry
  • Castor LLC
  • Data Registry Services LLC
  • Fibrolamellar Registry

第32章 全球市場競爭基準化分析與儀錶板

第33章 重大併購

第34章 近期市場趨勢

第35章：高潛力市場國家、細分市場與策略

  • 2029年雲端基礎罕見疾病家族登記市場：提供新機會的國家
  • 2029年雲端基礎罕見疾病家族登記市場：提供新機會的細分市場
  • 2029年雲端基礎罕見疾病家族登記市場：成長策略
    • 基於市場趨勢的策略
    • 競爭對手策略

第36章附錄

簡介目錄
Product Code: r38484

A cloud-based rare disease family registry is an online platform designed to securely collect, store, and manage health and family information related to rare diseases. It enables patients, families, and healthcare professionals to share data remotely, supporting research, improving patient care, and facilitating clinical trial recruitment.

The primary components of a cloud-based rare disease family registry include software and services. Software consists of programs, data, and instructions that guide a computer or device in performing specific tasks. Deployment options include public cloud, private cloud, and hybrid cloud solutions. Applications include patient data management, research, clinical trials, genetic data collection, and others. End users include hospitals and clinics, research institutions, pharmaceutical and biotechnology companies, patient advocacy groups, and other stakeholders.

Note that the outlook for this market is being affected by rapid changes in trade relations and tariffs globally. The report will be updated prior to delivery to reflect the latest status, including revised forecasts and quantified impact analysis. The report's Recommendations and Conclusions sections will be updated to give strategies for entities dealing with the fast-moving international environment.

The sudden escalation of U.S. tariffs and the consequent trade frictions in spring 2025 are severely impacting the healthcare sector, particularly in the supply of critical medical devices, diagnostic equipment, and pharmaceuticals. Hospitals and healthcare providers are facing higher costs for imported surgical instruments, imaging equipment, and consumables such as syringes and catheters, many of which have limited domestic alternatives. These increased costs are straining healthcare budgets, leading some providers to delay equipment upgrades or pass on expenses to patients. Additionally, tariffs on raw materials and components are disrupting the production of essential drugs and devices, causing supply chain bottlenecks. In response, the industry is diversifying sourcing strategies, boosting local manufacturing where possible, and advocating for tariff exemptions on life-saving medical products.

The cloud-based rare disease family registry market research report is one of a series of new reports from The Business Research Company that provides cloud-based rare disease family registry market statistics, including the cloud-based rare disease family registry industry global market size, regional shares, competitors with the cloud-based rare disease family registry market share, detailed cloud-based rare disease family registry market segments, market trends, and opportunities, and any further data you may need to thrive in the cloud-based rare disease family registry industry. This cloud-based rare disease family registry market research report delivers a complete perspective of everything you need, with an in-depth analysis of the current and future scenarios of the industry.

The cloud-based rare disease family registry market size has grown rapidly in recent years. It will grow from $1.19 billion in 2024 to $1.40 billion in 2025 at a compound annual growth rate (CAGR) of 17.8%. The growth observed during the historic period can be linked to the rising number of drug approvals, increasing demand for healthcare digitization, greater use of advanced data analytics, expanding adoption of provider-entered (site-based) registries, and growing demand for real-world evidence (RWE).

The cloud-based rare disease family registry market size is expected to see rapid growth in the next few years. It will grow to $2.68 billion in 2029 at a compound annual growth rate (CAGR) of 17.6%. The growth projected for the forecast period can be attributed to increased integration of AI-driven analytics, greater use of registries by pharmaceutical companies for post-marketing surveillance, rising demand for modular and specialty-specific registries, enhanced patient engagement through portals and remote tools, and growing adoption of health information exchange (HIE) and interoperability standards. Key trends during the forecast period include integration of wearables and IoT devices, development of blockchain solutions for secure data sharing, advancement of telehealth and remote monitoring integration, innovation in EHR-registry interoperability, investment in standardization, and expansion of patient-driven data collection.

The growing emphasis on precision medicine is expected to accelerate the growth of the cloud-based rare disease family registry market. Precision medicine tailors medical treatment and prevention strategies based on an individual's genetic, environmental, and lifestyle factors. Advances in genomic sequencing have enabled more accurate insights into patients' genetic makeup, driving the adoption of precision medicine. Cloud-based rare disease family registries contribute to this by centralizing comprehensive patient data, including genetic, clinical, and treatment information, which supports personalized healthcare. For example, in February 2024, the Personalized Medicine Coalition reported that the FDA approved 16 new personalized therapies for rare diseases in 2023, a significant increase from the six approvals in 2022. These new therapies include treatments for cancer and other conditions, highlighting the growing focus on precision medicine. As a result, this trend is fueling the expansion of the cloud-based rare disease family registry market.

Companies operating in the cloud-based rare disease family registry market are introducing technological innovations, such as bilingual federated registries, to enhance patient, family, and researcher engagement. Bilingual federated registries are cloud-based systems that allow data to remain at local sites while supporting multiple languages and adhering to regional consent and privacy regulations. For example, in June 2025, the National Organization for Rare Disorders (NORD) announced plans to launch two Canadian patient registries for PKU and MPS. These registries, created in collaboration with Canadian advocacy groups, clinicians, and researchers, will be the first outside the U.S. in the IAMRARE Program. They will comply with provincial consent laws, enable real-time data collection and analysis, and support research into rare metabolic disorders, clinical trials, and patient recruitment.

In May 2025, Vora Ventures, a US-based equity firm, acquired Hive Networks Inc. to extend its reach in the rare and chronic disease research space. Hive Networks, a healthcare technology company, provides a cloud-based AI-powered platform for collaboration among patients, families, clinicians, and researchers. This acquisition is aimed at improving collaboration, data sharing, and patient outcomes in the rare and chronic disease sectors by leveraging Hive Networks' platform as a collaborative infrastructure for secure data exchange.

Major players in the cloud-based rare disease family registry market are Thermo Fisher Scientific Inc., IQVIA Holdings Inc., ICON plc, Syneos Health Inc., Parexel International Corp., Medidata Solutions Inc., FIGMD Inc., OM1 Inc., Mission Health Labs Inc., TREAT-NMD Global Registries Platform, Seqster PDM Inc., ArborMetrix Inc., OpenClinica LLC, Pulse Infoframe Inc., Oracle Healthcare Pvt. Ltd., QuesGen Systems Inc., FTD Disorders Registry, Castor LLC, Data Registry Services LLC, Fibrolamellar Registry, Rare Central.

North America was the largest region in the cloud-based rare disease family registry market in 2024. Asia-Pacific is expected to be the fastest-growing region in the forecast period. The regions covered in cloud-based rare disease family registry report are Asia-Pacific, Western Europe, Eastern Europe, North America, South America, Middle East and Africa.

The countries covered in the cloud-based rare disease family registry market report are Australia, Brazil, China, France, Germany, India, Indonesia, Japan, Russia, South Korea, UK, USA, Canada, Italy, Spain.

The cloud-based rare disease family registry market consists of revenues earned by entities by providing services such as data hosting, data integration, data security, data sharing, data analytics, data storage, interoperability support, registry customization, patient engagement support, technical support, and training services, maintenance services. The market value includes the value of related goods sold by the service provider or included within the service offering. The cloud-based rare disease family registry market also includes sales of data storage devices, networking equipment, diagnostic kits, biometric devices, patient monitoring devices, data backup systems, security hardware, computing workstations, and mobile devices. Values in this market are 'factory gate' values, that is the value of goods sold by the manufacturers or creators of the goods, whether to other entities (including downstream manufacturers, wholesalers, distributors and retailers) or directly to end customers. The value of goods in this market includes related services sold by the creators of the goods.

The market value is defined as the revenues that enterprises gain from the sale of goods and/or services within the specified market and geography through sales, grants, or donations in terms of the currency (in USD unless otherwise specified).

The revenues for a specified geography are consumption values that are revenues generated by organizations in the specified geography within the market, irrespective of where they are produced. It does not include revenues from resales along the supply chain, either further along the supply chain or as part of other products.

Cloud-Based Rare Disease Family Registry Global Market Report 2025 from The Business Research Company provides strategists, marketers and senior management with the critical information they need to assess the market.

This report focuses on cloud-based rare disease family registry market which is experiencing strong growth. The report gives a guide to the trends which will be shaping the market over the next ten years and beyond.

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  • All data from the report will also be delivered in an excel dashboard format.

Where is the largest and fastest growing market for cloud-based rare disease family registry ? How does the market relate to the overall economy, demography and other similar markets? What forces will shape the market going forward, including technological disruption, regulatory shifts, and changing consumer preferences? The cloud-based rare disease family registry market global report from the Business Research Company answers all these questions and many more.

The report covers market characteristics, size and growth, segmentation, regional and country breakdowns, competitive landscape, market shares, trends and strategies for this market. It traces the market's historic and forecast market growth by geography.

  • The market characteristics section of the report defines and explains the market.
  • The market size section gives the market size ($b) covering both the historic growth of the market, and forecasting its development.
  • The forecasts are made after considering the major factors currently impacting the market. These include:

The forecasts are made after considering the major factors currently impacting the market. These include the technological advancements such as AI and automation, Russia-Ukraine war, trade tariffs (government-imposed import/export duties), elevated inflation and interest rates.

  • Market segmentations break down the market into sub markets.
  • The regional and country breakdowns section gives an analysis of the market in each geography and the size of the market by geography and compares their historic and forecast growth.
  • The competitive landscape chapter gives a description of the competitive nature of the market, market shares, and a description of the leading companies. Key financial deals which have shaped the market in recent years are identified.
  • The trends and strategies section analyses the shape of the market as it emerges from the crisis and suggests how companies can grow as the market recovers.

Scope

  • Markets Covered:1) By Component: Software; Services
  • 2) By Deployment Mode: Public Cloud; Private Cloud; Hybrid Cloud
  • 3) By Application: Patient Data Management; Research; Clinical Trials; Genetic Data Collection; Other Applications
  • 4) By End-User: Hospitals And Clinics; Research Institutes; Pharmaceutical And Biotechnology Companies; Patient Advocacy Groups; Other End-Users
  • Subsegments:
  • 1) By Software: Electronic Data Capture; Data Management Platform; Analytics And Reporting Tools; Patient Engagement Tools; Clinical Trial Management System
  • 2) By Services: Implementation And Integration; Training And Support; Data Hosting And Security; Consulting Services; Maintenance And Upgrades
  • Companies Mentioned: Thermo Fisher Scientific Inc.; IQVIA Holdings Inc.; ICON plc; Syneos Health Inc.; Parexel International Corp.; Medidata Solutions Inc.; FIGMD Inc.; OM1 Inc.; Mission Health Labs Inc.; TREAT-NMD Global Registries Platform; Seqster PDM Inc.; ArborMetrix Inc.; OpenClinica LLC; Pulse Infoframe Inc.; Oracle Healthcare Pvt. Ltd.; QuesGen Systems Inc.; FTD Disorders Registry; Castor LLC; Data Registry Services LLC; Fibrolamellar Registry; Rare Central
  • Countries: Australia; Brazil; China; France; Germany; India; Indonesia; Japan; Russia; South Korea; UK; USA; Canada; Italy; Spain
  • Regions: Asia-Pacific; Western Europe; Eastern Europe; North America; South America; Middle East; Africa
  • Time Series: Five years historic and ten years forecast.
  • Data: Ratios of market size and growth to related markets, GDP proportions, expenditure per capita,
  • Data Segmentations: country and regional historic and forecast data, market share of competitors, market segments.
  • Sourcing and Referencing: Data and analysis throughout the report is sourced using end notes.
  • Delivery Format: PDF, Word and Excel Data Dashboard.

Table of Contents

1. Executive Summary

2. Cloud-Based Rare Disease Family Registry Market Characteristics

3. Cloud-Based Rare Disease Family Registry Market Trends And Strategies

4. Cloud-Based Rare Disease Family Registry Market - Macro Economic Scenario Including The Impact Of Interest Rates, Inflation, Geopolitics, Trade Wars and Tariffs, And Covid And Recovery On The Market

  • 4.1. Supply Chain Impact from Tariff War & Trade Protectionism

5. Global Cloud-Based Rare Disease Family Registry Growth Analysis And Strategic Analysis Framework

  • 5.1. Global Cloud-Based Rare Disease Family Registry PESTEL Analysis (Political, Social, Technological, Environmental and Legal Factors, Drivers and Restraints)
  • 5.2. Analysis Of End Use Industries
  • 5.3. Global Cloud-Based Rare Disease Family Registry Market Growth Rate Analysis
  • 5.4. Global Cloud-Based Rare Disease Family Registry Historic Market Size and Growth, 2019 - 2024, Value ($ Billion)
  • 5.5. Global Cloud-Based Rare Disease Family Registry Forecast Market Size and Growth, 2024 - 2029, 2034F, Value ($ Billion)
  • 5.6. Global Cloud-Based Rare Disease Family Registry Total Addressable Market (TAM)

6. Cloud-Based Rare Disease Family Registry Market Segmentation

  • 6.1. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • Software
  • Services
  • 6.2. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • Public Cloud
  • Private Cloud
  • Hybrid Cloud
  • 6.3. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • Patient Data Management
  • Research
  • Clinical Trials
  • Genetic Data Collection
  • Other Applications
  • 6.4. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By End-User, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • Hospitals And Clinics
  • Research Institutes
  • Pharmaceutical And Biotechnology Companies
  • Patient Advocacy Groups
  • Other End-Users
  • 6.5. Global Cloud-Based Rare Disease Family Registry Market, Sub-Segmentation Of Software, By Type, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • Electronic Data Capture
  • Data Management Platform
  • Analytics And Reporting Tools
  • Patient Engagement Tools
  • Clinical Trial Management System
  • 6.6. Global Cloud-Based Rare Disease Family Registry Market, Sub-Segmentation Of Services, By Type, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • Implementation And Integration
  • Training And Support
  • Data Hosting And Security
  • Consulting Services
  • Maintenance And Upgrades

7. Cloud-Based Rare Disease Family Registry Market Regional And Country Analysis

  • 7.1. Global Cloud-Based Rare Disease Family Registry Market, Split By Region, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 7.2. Global Cloud-Based Rare Disease Family Registry Market, Split By Country, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

8. Asia-Pacific Cloud-Based Rare Disease Family Registry Market

  • 8.1. Asia-Pacific Cloud-Based Rare Disease Family Registry Market Overview
  • Region Information, Market Information, Background Information, Government Initiatives, Regulations, Regulatory Bodies, Major Associations, Taxes Levied, Corporate Tax Structure, Investments, Major Companies
  • 8.2. Asia-Pacific Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 8.3. Asia-Pacific Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 8.4. Asia-Pacific Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

9. China Cloud-Based Rare Disease Family Registry Market

  • 9.1. China Cloud-Based Rare Disease Family Registry Market Overview
  • 9.2. China Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F,$ Billion
  • 9.3. China Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F,$ Billion
  • 9.4. China Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F,$ Billion

10. India Cloud-Based Rare Disease Family Registry Market

  • 10.1. India Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 10.2. India Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 10.3. India Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

11. Japan Cloud-Based Rare Disease Family Registry Market

  • 11.1. Japan Cloud-Based Rare Disease Family Registry Market Overview
  • 11.2. Japan Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 11.3. Japan Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 11.4. Japan Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

12. Australia Cloud-Based Rare Disease Family Registry Market

  • 12.1. Australia Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 12.2. Australia Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 12.3. Australia Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

13. Indonesia Cloud-Based Rare Disease Family Registry Market

  • 13.1. Indonesia Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 13.2. Indonesia Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 13.3. Indonesia Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

14. South Korea Cloud-Based Rare Disease Family Registry Market

  • 14.1. South Korea Cloud-Based Rare Disease Family Registry Market Overview
  • 14.2. South Korea Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 14.3. South Korea Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 14.4. South Korea Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

15. Western Europe Cloud-Based Rare Disease Family Registry Market

  • 15.1. Western Europe Cloud-Based Rare Disease Family Registry Market Overview
  • 15.2. Western Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 15.3. Western Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 15.4. Western Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

16. UK Cloud-Based Rare Disease Family Registry Market

  • 16.1. UK Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 16.2. UK Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 16.3. UK Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

17. Germany Cloud-Based Rare Disease Family Registry Market

  • 17.1. Germany Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 17.2. Germany Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 17.3. Germany Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

18. France Cloud-Based Rare Disease Family Registry Market

  • 18.1. France Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 18.2. France Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 18.3. France Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

19. Italy Cloud-Based Rare Disease Family Registry Market

  • 19.1. Italy Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 19.2. Italy Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 19.3. Italy Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

20. Spain Cloud-Based Rare Disease Family Registry Market

  • 20.1. Spain Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 20.2. Spain Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 20.3. Spain Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

21. Eastern Europe Cloud-Based Rare Disease Family Registry Market

  • 21.1. Eastern Europe Cloud-Based Rare Disease Family Registry Market Overview
  • 21.2. Eastern Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 21.3. Eastern Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 21.4. Eastern Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

22. Russia Cloud-Based Rare Disease Family Registry Market

  • 22.1. Russia Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 22.2. Russia Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 22.3. Russia Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

23. North America Cloud-Based Rare Disease Family Registry Market

  • 23.1. North America Cloud-Based Rare Disease Family Registry Market Overview
  • 23.2. North America Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 23.3. North America Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 23.4. North America Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

24. USA Cloud-Based Rare Disease Family Registry Market

  • 24.1. USA Cloud-Based Rare Disease Family Registry Market Overview
  • 24.2. USA Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 24.3. USA Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 24.4. USA Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

25. Canada Cloud-Based Rare Disease Family Registry Market

  • 25.1. Canada Cloud-Based Rare Disease Family Registry Market Overview
  • 25.2. Canada Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 25.3. Canada Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 25.4. Canada Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

26. South America Cloud-Based Rare Disease Family Registry Market

  • 26.1. South America Cloud-Based Rare Disease Family Registry Market Overview
  • 26.2. South America Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 26.3. South America Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 26.4. South America Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

27. Brazil Cloud-Based Rare Disease Family Registry Market

  • 27.1. Brazil Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 27.2. Brazil Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 27.3. Brazil Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

28. Middle East Cloud-Based Rare Disease Family Registry Market

  • 28.1. Middle East Cloud-Based Rare Disease Family Registry Market Overview
  • 28.2. Middle East Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 28.3. Middle East Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 28.4. Middle East Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

29. Africa Cloud-Based Rare Disease Family Registry Market

  • 29.1. Africa Cloud-Based Rare Disease Family Registry Market Overview
  • 29.2. Africa Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 29.3. Africa Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
  • 29.4. Africa Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion

30. Cloud-Based Rare Disease Family Registry Market Competitive Landscape And Company Profiles

  • 30.1. Cloud-Based Rare Disease Family Registry Market Competitive Landscape
  • 30.2. Cloud-Based Rare Disease Family Registry Market Company Profiles
    • 30.2.1. Thermo Fisher Scientific Inc. Overview, Products and Services, Strategy and Financial Analysis
    • 30.2.2. IQVIA Holdings Inc. Overview, Products and Services, Strategy and Financial Analysis
    • 30.2.3. ICON plc Overview, Products and Services, Strategy and Financial Analysis
    • 30.2.4. Syneos Health Inc. Overview, Products and Services, Strategy and Financial Analysis
    • 30.2.5. Parexel International Corp. Overview, Products and Services, Strategy and Financial Analysis

31. Cloud-Based Rare Disease Family Registry Market Other Major And Innovative Companies

  • 31.1. Medidata Solutions Inc.
  • 31.2. FIGMD Inc.
  • 31.3. OM1 Inc.
  • 31.4. Mission Health Labs Inc.
  • 31.5. TREAT-NMD Global Registries Platform
  • 31.6. Seqster PDM Inc.
  • 31.7. ArborMetrix Inc.
  • 31.8. OpenClinica LLC
  • 31.9. Pulse Infoframe Inc.
  • 31.10. Oracle Healthcare Pvt. Ltd.
  • 31.11. QuesGen Systems Inc.
  • 31.12. FTD Disorders Registry
  • 31.13. Castor LLC
  • 31.14. Data Registry Services LLC
  • 31.15. Fibrolamellar Registry

32. Global Cloud-Based Rare Disease Family Registry Market Competitive Benchmarking And Dashboard

33. Key Mergers And Acquisitions In The Cloud-Based Rare Disease Family Registry Market

34. Recent Developments In The Cloud-Based Rare Disease Family Registry Market

35. Cloud-Based Rare Disease Family Registry Market High Potential Countries, Segments and Strategies

  • 35.1 Cloud-Based Rare Disease Family Registry Market In 2029 - Countries Offering Most New Opportunities
  • 35.2 Cloud-Based Rare Disease Family Registry Market In 2029 - Segments Offering Most New Opportunities
  • 35.3 Cloud-Based Rare Disease Family Registry Market In 2029 - Growth Strategies
    • 35.3.1 Market Trend Based Strategies
    • 35.3.2 Competitor Strategies

36. Appendix

  • 36.1. Abbreviations
  • 36.2. Currencies
  • 36.3. Historic And Forecast Inflation Rates
  • 36.4. Research Inquiries
  • 36.5. The Business Research Company
  • 36.6. Copyright And Disclaimer